What We Have Found Out

Ok....Hudson had his EEG which was an experience in itself....one word..HORRIBLE....but we wont dwell on that. We just meet with the consulting neurology team and heard what we hoped we WOULDN'T hear. Hudson's EEG was abnormal with his seizure occurring in the back right lobe of his brain, meaning a "focal" seizure. Generalized seizures are the more common and less severe seizures but his was not. Typically a child isn't started on meds after their first seizure but due to it being a focal seizure, the length, and the fact that it will probably occur again they wanted him started right away. They are releasing us but we will need to find a neurologist in Dallas and get an MRI done. The main danger in his type of seizure is the length..anything over 5 minutes gets dangerous and again, his was probably over an hour. They are also sending us home with an emergency med in case he has another one on the road to be administered. If it stops in 3-5 minutes we can continue but if not it will require the ER.

SO, I know you will continue to pray for us as we travel. We have about another 8 hours on the road. The kids have been SO great but are disappointed over their New Years Eve plans. We plan on getting the girls to Dallas to meet up with their Youth Group for the NY's Eve blowout, Jordan is still undecided...we all are gross....I am covered in puke and pee but it is so worth it having Hudson back to his normal funny self and we will ring in the New Year SO VERY GRATEFUL for this boy.

Hudson was scheduled for surgery the 18th to remove very large tonsils. He has never been sick but his next palate surgery is his p-flap and is tonsils are so large they will obstruct this next phase of surgery which is crucial to his speech. He then has to wait 5-6 months after his tonsil surgery to do his p-flap and we so pray this won't interrupt all of that. I guess we will find all of that out in the next couple weeks as we add yet another specialist to our growing list. Again, we are not complaining. We are so blessed by Hudson and know God sees all that lays ahead of us, we trust in Him!!!

UPDATE

Dear Friends....First,,,THANK YOU for your prayers!!!! We have needed them and felt them. SECOND....Hudson has finally come around and seems to be fine. I will re-cap on what happened.

We typically drive straight thru from MN to TX but were not in a hurry and decided to spend the night in Kansas City and take the kids out for a nice dinner on the Plaza. We loaded up and left the hotel about 8:30 this morning. Hudson was fine, talking, laughing, etc but a bit cranky...nothing unusual as he had been up late the night before. I did think he looked really pale but.....not much thought to it. He was asleep within minutes. About 30 minutes down the road we stopped at a drive thru for breakfast. He didn't wake up, again, no big deal...Jordan and Madi were both sleeping too. About 10 minutes later back on the road I heard him moving and turned to check on him. He was turned to his left and appeared to be straining to see out the back side window...I said "Hud, what are you looking at"...he didn't respond, just kept staring out the window....Kailee then asked him if he wanted some hot chocolate and he shook his head "no"...he did have a sort of blank look on his face but again....Looking back on all of it now I KNOW he was starting to have his seizure then...

SO.. about 40 minutes down the road I turned to look at him (he was in his car seat between the girls). IMMEDIATELY I knew something was wrong....he had a strange fixed gaze at the ceiling in the car, he was a sort of green/yellowish color, his head had a strange tilt to the left and he wouldn't respond to me....I said "Something is wrong with Hudson" and Kailee and I quickly traded places. I yanked him out of car seat and he was limp and lifeless. His eyes were open but his eyeballs were fixed to the far left of his eyes and he would not respond AT ALL...I really think he wasn't breathing at the moment. As soon as I picked him up a large amount of foam spilled out of his mouth. I couldn't find a pulse and for a few minutes honestly thought "he is gone"...a hundred thoughts went thru my head but one that stands out to me was saying to my mom..."No mom....you can't be with him yet"...weird thought but that was what I thought...We were on the phone with 911.....we had NO idea where we were, what to do, who could help. The 911 dispatcher had us exit the next exit and sent an ambulance.....it was 15 minutes away.....SOO..here we were, in the middle of MO, at a gas station, I had Hudson outside walking with him in the parking lot hoping the cold would get him to come around a bit, the girls were sobbing, Jordan was praying, Mark was crying, praying......I KNEW I needed people to pray so handed him to Mark so I could call Pam....she didn't answer so I called my friend Jeni to get the prayers going.....no details, there were none to give, "just please pray".... a few very kind but very hick first responders got there and they looked like heavenly angels....at least someone was there to give him CPR if he needed it, I just didn't think I could. FINALLY the ambulance arrived and we headed back north 15 minutes to a little hospital. STILL no response, fixed eyes and stiff neck, all to the left....... It wasn't until we were in the hospital and they gave him something to pull him out of the seizure did he relax and fall asleep.

We are now at Children's Mercy in Kansas City, MO., transferred by ambulance. He just woke up in about the last hour, was hungry and is happy Hudson. What we know...CT scan is normal, chest x-ray is normal, blood work normal, good vitals. What we don't know...why?? The dr. talked at length with us.....lots of kids have seizures, lots of times they don't know why. When a seizure is short and just once they typically don't do much. They are a bit more concerned with Hudson for a few reasons...his seizure was really long, about an hour, or was a series of several, he had to be pulled out of it, and his Cleft......The neurologist wants to do an EEG in the am and really evaluate him as the Avatar/atavan (sp?) can hide symptoms. Mark's sister Tanya and her husband are on their way and they have a Ronald McDonald house where Mark and the kids can stay.

Seriously, five minutes before I turned to look at Hudson I was telling Mark how much I was looking forward to getting home and getting back to "normal" after our year. We are truly so grateful for the care that has been given to Hudson today.... After 17 1/2 years of parenting, this has been by far the scariest. The kids have been wonderful, they were all so scared and we couldn't really tend to them as we were consumed with Hudson. They sure love their little brother!!!

THANKS to all of you for your comments, emails, fb messages, and texts...We pray that all tests come back normal, this was a freak one time episode, and we can get home tomorrow.....

I'll keep you updated my friends!!!!

Prayer for Hudson!

Hey Ya'll,

This is Pam posting for Sharon. Please pray for Hudson. This morning on their way home from Minnesota, Hudson had a seizure. They called an ambulance from the side of the road. They were in Kansas City. He was unresponsive for awhile, so they medicated him to get him to come out of it. He is now being transferred to Children's Hospital in Kansas City. His CT Scan has come back normal. He has never shown any signs of seizures or anything. Please pray for the entire family....It is so hard to watch your child go through this. Lift them up in Prayer. Sharon or I will update you as soon as possible.

Thank you!

Christmas Morning

drinking out of the same Santa cup I did when I was little

big brother putting together toys

loving Thomas!

Christmas Eve

A little hot tubing before dinner

the challenge to run out in the snow (cousin Jack fell in the snow behind Grandpa)

Sharing the love..

Looking for Santa (which we have never done but certian family members do...)

Just happy to be here!!!