First day of 2010

Today was a very nice uneventful day....we arrived home with no more episodes about 10:30 last night. The girls made it to their NY Eve's event just before midnight and were home by 7:30 this morning and slept until late this afternoon. Hudson was thrilled to be home and played all day with his Christmas presents, a very content little boy. We started him on his medication yesterday and have noticed such wild behavior. I don't know if this is from the RX or what but he is bouncing off the walls. For instance he was attempting to run on our dining room table which is six feet long...of course I stopped him immediately. He is LOUD and crazy but very happy.

I decided to call a friend of ours tonight. He is neurologist and did my neck fusion a couple years ago. After having 24 hours to "think" about all we were told we had some questions and since it is the weekend we hated to go until Monday without some better understanding.

First, to correct some info from yesterday...I was wrong to say focal seizures are less common or more dangerous than generalized. Basically, what it means is focal seizures are in one area of the brain so only certain things are affected..like a limb twitching or not being able to talk but the person doesn't lose consciousness. Generalized is when the whole brain is affected and this would have been what he had since he was unresponsive. The confusion came because we were told of the abnormality that was seen by the EEG of his right occipital lobe. The seizure started there but then spread to his entire brain...or that is what we think. His seizure was so dangerous because of the length, which is very unusual. The MRI will be done to give a detailed picture of his brain, hoping to find out what the abnormality is and why it is there, again, we may not know. Everything I read says they start with a long detailed history of his family....hmmm, guess we will get to skip that part...

Several people have asked me about night time and this was one reason I called our friend. Because he didn't show any outward signs such as twitching, jerking, making noise it causes us a little bit of "thought" as to what to do at night. Our friend said other than taking turns watching him there is not much we can do unless they set him up on monitors. He is sleeping with us and we are just praying for the Lord to waken us if anything happens. I am not going to be fearful and will ask the dr. this question next week.

The above picture was from Christmas Eve...Hudson is himself but the night in the hospital did something he hasn't done since first coming home from China. The first month or so he would fall asleep with his hands on each side of my face and sleep nose to nose with me. If I tried to move during the night he would, in his sleep, grab my face. He did this Wednesday night. He doesn't seem to remember much from the last couple days but has hugged my neck like in the picture above and said "I love you mama" probably 30 times today.

I appreciate all of you checking in and sending us your prayers, keep them coming. Of course, reading the internet can be a scary thing so we try to limit our knowledge to what the dr.s tell us.

Happy New Year to all of you!!!! I am excited for those of my blog friends who are traveling this year to bring home your children....what a treasure they are!!!!!