Post-Surgery Update

We are 2 weeks post-op and finally have smiles back!!  This was a rough recovery and Dr G was right, Hudson was in signficant pain for several days.  We used pain meds much longer than we ever have after surgery and Hudson was not our happy, sweet loving little boy.  He stayed mad at me pretty much through this past weekend as I was the one (and still am) cleaning his incision sights and nose.   I don't blame him as his nose is still so sore and the dr wants it flushed out with saline twice a day and then swabbed inside.  His fistula repair seems to be holding together and we are slowly introducing soft foods instead of all liquids. 

His speech already seems improved which I am surprised about but I guess there was a significant amount of air flow escaping through his nose that this has made a difference.  We are most impressed with his lip and the shape it has compared to the flat undefined lip he had before.  I am sure it will be months to see the full effect of this surgery as swelling can take that long to go down.   He also now has a two clear nostrils.  Before they were so full of scar tissue it took up almost all of his nasal passages.  He is sleeping so much better with no snoring and I am sure feels better being able to breath clearly. 

Now that his stiches are out and his nose isn't so scabbed over he seems to feel much better about his looks.  He often looks at his baby pictures and doesn't like the look of his cleft so I am sure with all those stiches he thought he had that look back.   His first outing was to church this weekend and then school Monday and he was excited to do both so that was a relief.   We are so grateful to skilled surgeons and medicine and the access we have here in the US but we are SO looking forward to a couple years of no surgeries.  We don't expect another surgery until sometime after Hudson turns 7 unless our next few months of intense speech therapy don't get desired results and then Dr G may do a palate revision BUT....we are confident that can be avoided. 

Thanks again for all your prayers!!!

Before

AFTER

Surgery update

Thank you for all your prayers!!!  Surgery went well.  It was actually about an hour shorter than expected and NO breathing problems.  The ENT/anestiologist did a scope before surgery started and looked at Hudson's airway for any obstructions as the anest thought he felt something.  Although his vocal cord area was small they rest of his airway looked good so they used a smaller breathing tube to cut down on swelling.  We were actually in the recovery when he woke up and he sat right up and started screaming in pain.  They quickly got something in him to calm him down but it was obvious his breathing was fine and oxygen states were 100%!!!!  Dr G warned us he would look very different and he would be in a significant amount of pain as he was "very aggressive".  He has more stiches than they counted, in his palate, nose, lip and under his lip.

In recovery

Our first night went pretty well, he was up like clockwork for pain meds but we were headed for home by 9:30 am!  Last night he slept ALL night, pain meds at 8:30 and then he slept until 6:30 this morning.   He is still in pain but the swelling is starting to go down which has got to feel better.  His face was so tight yesterday it looked as if he might bust open!

The stay was made a bit better as our friends were next door to us throught our 24 hour stay.  I became friends with Melinda through our agency AWAA.  We had a secret pal exchange during our wait time and Melinda ended up with me.  I didn't know who she was but she was SO faithful to send Hudson gifts every month before we traveled and after he came home and I know her family was so faithful to pray for us every step of the way.  When it was revealed who she was she told me she and Darrell had attended a seminar AWAA held at our church when they were doing paperwork and we were waiting for a referral.  We had switched to SN by that time and spoke about our experience and decision.  They already had a heart for SN and traveled shortly after we did to bring home their daughter.  We have celebrated two Chinese New Years with them and forged a great friendship.  Our 14 year olds share the SAME birthday and are friends.    I happened to check Melinda's blog a few day before surgery and saw her son (who came home 10 months ago) was scheduled for surgery the same day as Hudson.  I knew she used a surgeon at the same hospital as us so immediately texted her.  Both boys were set for surgery at 7:30 am so we both arrived at 6 am, went up to "holding" together and were together while the boys were in surgery.  Once upstairs our rooms were right next to each other so we spent time together why boys slept, listening at our doors.  Hudson was so concerned about Ben leading up to surgery and couldn't wait to play in the hospital.  Obviously, not realizing this "play date" was not going to be real fun.  They did get a bit of time together before we both checked out Friday morning.  This is one of the reasons we love the adoption family.  You are so immediately bonded together and those friendships seem to sustain through time and distance!!!  We LOVE this family and their love for the Lord and the orphans!!! They are amazing and we are SO grateful they are in our lives!!!!  Please pray for Ben, this is his 2nd palate repair.

....before sugery....

....the day after.....

The hardest part of this surgery has been Hudson being fully aware of his "look"...he saw his face by accident when we go in the elevator and there was a mirror.  He said "I don't like my face".   On the way home he questioned us as to where we were going..did he have to go to school?  did he have to go our offices?  did he have to go to church?  A friend of mine wanted to stop by and see him and he told me "i don't want anyone to see me like this, I don't like my face".  He asked me again this morning if he had to go to church tomorrow and said "I look funny, I don't want anyone to see me"...heartbreaking!!!  I have tried to reassure him that he would not look this way always but that we would stay home as long as he needed.  We go back on Wednesday to have stiches removed.  They put him back in the OR for this and sedate him (with just gas) as there are so many and they don't want to put him through the trauma...THANK YOU DR G!!!!!!
His swelling is already going down but it is still hard to "see" what his new look is.  I know it will be several weeks  for all the swelling to decrease.  We are on a liquid diet for two weeks...UGH!!  He is asking for tuna soup.... I made that yesterday....YUCK!!! but he loved it!!!  Thanks again for the posts, emails and texts!!  As hard as this is we know it is for his good and are so grateful for your prayers....

 evening of day two

(prior to surgery his bottom lip was well in front of his lower lip)

Facial Reconstruction-surgery #5

This sweet face will change tomorrow.
 Hudson is having his 5th surgery related to his cleft (6th surgery in all).  We have been trying for a year to change from his former surgeon to a cleft team.  We were finally accepted by the team last month and we were shocked when his craniofacial surgeon wanted him scheduled for surgery right away.  We were not expecting another surgery until he was at least 7 and since he just had surgery in Oct this took us by surprise BUT....we are thrilled with the team and how hard they have worked on Hudson's behalf in just a month (another story for another day).  This surgery is the beginning of his facial reconstruction.  After closing a fistula in his palate they will begin on his nose and lip.  He has lots of scar tissue in his nose and it is visible at the base of his nose.  One of his nostrils is almost blocked inside with scar tissue.  This will be cleaned out and open up his nasal passages.  Dr G will then do a "lift" on the tip of his nose and bring in his nostrils.  Right now he has a very adult/wide looking nose and Dr G wants to give him a more "true to his age" nose.  He will also create the dimple above his lip that most of us have and bring in the sides around that dimple.   He will also get a 2nd set of tubes which will bring his loss of hearing back up.  The surgery will last about 3 hours and starts bright and early at 7:30 am.  Hudson is now fully aware of surgery and the after effects so this week has been a bit tough for him.  It is so hard as parents to know they will face pain with our permission......but we know it is for his benefit and part of what we signed up for.   His friend Ben is having surgery at the exact time so we will be sharing the waiting room with Ben's parents.   A "small world" story.  

Tonight Kailee, Hudson and I went out to take pictures in the Blue Bonnets.  Hudson has been learning about them at school and although it is a TX tradition to take pictures in the Blue Bonnets I haven't done it in years...and the first time with Hudson.  I figured I better get some pictures of the face that we adore.  It is always sad to know his face will change.  Last night as we were praying I thanked God for doctors.  Hudson asked "why?" and I said "doctors make us feel better and fix things"...he said "but I don't need fixing"....oh sweet boy.....you are right....so perfect in our eyes!!!!!

I appreciate your prayers....it is always a long day and longer night.  PICU is on standby as Hudson struggles so much coming out of anesthesia...we are praying we avoid that!!!

Kailee turns 14!!

This past Saturday, April 9th this cute thing turned 14!!!!  So hard to believe my baby girl is about to enter high school.    

Kailee was breech three times before she burst forth into this world after only 1.5 hours of labor and was delivered by the nurses.  No pain meds and not even in the proper position this little thing introduced herself to us pretty much like she does life to this day.  Determined, hard working and when she puts her mind to something she just does it until.....Her tumbling in the womb has never stopped and she recently made JV cheerleading for next year.  Her gymnastic team days have transferred to tumbling on the field and courts and her small size has her flying way on top...(A little nervous about those 9 high pyramids in highchool  

She began walking at 9 months....such a tiny thing it was strange to see her toddling around.

(yes, she has her arm in a cast here due to soccer and already in a bearcat cheer uniform!)

Kailee has been a trooper this year transferring from her small Christian school to a large public school.  She has reconnected with friends from her soccer days (most of the girls in the pictures below began playing soccer together at age 4 and continued together for several years).   We had a fun night taking them out to eat, ice cream and then home for a slumber party.  They all now play VB together and all but three of the girls below have been cheering together and will continue next year.   I recognize how quickly time goes and in just two short years they will all be driving and days of mom and dad taking them out will be history!

Happy Birthday Kailee!!!  We are so proud of you!

One of the most life changing weekends ever!!!

I am headed here in one hour to spend the weekend in intercessory prayer for the college generation.  This is the 3rd time I have done this, the first in One Day 2003 which was held right outside of Sherman.  Even before One Day I longed for the day my son (and eventually girls) could be a part of this amazing group and today is the day.  You have to be a high school Sr or College student to attend.  It is a weekend where the students spend seeking Gods face for their lives and is JAM PACKED with the most fabulous speakers and worship leaders in the world.  I am thrilled that Jordan asked to go a year ago and is excited for this weekend.  He is headed off with a few friends from his discipleship group at church and others and I can't wait to hear what God will show him this weekend, how his faith will be challenged and how he will be encouraged  for HIS FAME AND RENOWN.  It is an amazing priviledge to spend the weekend praying for these kids and is UNBELIEVABLE what God does.  Pray for me as I pray for our 268 Generation....your kids will be there one day!!!!!